Skin Cancer, Fibroids, & Piriformis Syndrome, OH MY!

I was on the Upper East Side for a pre-surgical testing appointment a couple of months ago. After the appointment I met a friend at Alice’s Tea Cup. I arrived with a large bandage covering stitches on my throat. This wasn’t the surgery I was having testing for, but one I had had 2 weeks prior. My friend, who was born and raised in Mumbai asked me how I was going to go to India with “all of these surgeries.” Very good point. This fall and winter I seem to always be going to a doctor, looking for a doctor or having a procedure/surgery. My thinking was that I wanted to get everything taken care of before we moved to a place where I don’t know any doctors or have any sense of how the medical system works, but getting healthy is turning into a full-time job!

After Mia was born I had a scab on my throat which would bleed on and off without properly healing. I didn’t think it was a big deal, but decided to get checked out just in case. Needless to say, it was something–basal cell skin cancer. If you’re going to get cancer, it’s a really good one to get: Slow growing so it doesn’t spread quickly. I was told that this type of skin cancer is usually seen in patients starting in their 50’s, so I was a bit young, but during high school summers I often covered cardboard with tin foil and baked myself in my backyard so this whole skin cancer thing made sense.

Mohs surgery, which is the type done when the area is really visible like on the face or neck, wasn’t so bad. The dermatologist was very appreciative that I had brought and taken my own Xanax before he started cutting. With a scalpel cutting into the throat that close to the face many of his patients aren’t quite so calm. The only really uncomfortable part was sitting in the waiting room with a big bandage covering an open wound while the doctor looked at skin cells under the microscope to see if he removed all the bad ones. But I only had to go back twice to have more cells removed, so pretty easy. And I kinda like the once inch scar. It looks like I have some life experience. I prefer to tell people knife fight if they ask what happened.

The next procedure was having 8 fibroids removed. Apparently, and I never knew this, pretty much every woman has these non-cancerous growths in the uterus. Sometimes they grow large and need to be removed and other times they are just there not causing any issues and can be left alone or shrink on their own after menopause. I was told by my OB that very rarely they can be cancerous. So better to be safe than sorry and have them removed. I wasn’t so sure. As a rule of thumb, I prefer not to have stuff cut out of my body if I can help it. I spoke with an acupuncturist and did some internet research and decided that completely cutting out gluten, taking vitamins to clean out the liver and using castor oil packs on my abdomen every other day were going to do the trick. I went back to my OB 3 weeks later to see how well my homeopathic remedies were working. Well, not so much. Maybe I didn’t give them enough time or believe firmly enough. But with the move across the world on the horizon, I figured I’d just get the fibroids taken care of medically.

My doctor said that this was a very simple “procedure”—he never used the word “surgery”—so when I showed up at the hospital, and had to put on the gown and that unfortunate looking cap that covers your hair, get an IV, meet the anesthesiologist, wait in a holding area with others in gowns and caps, where everyone looked like they were about to have a surgery, not a procedure I started to second guess my decision. Surely I could just live with these fibroids. They caused a bit of discomfort, but nothing I couldn’t live with. However, soon the Xanax (again, I brought my own) kicked in and I was feeling better about the whole thing: I was already at the hospital, had fasted for 15 hours, so why not just go through with it? By the grace of God that surgery went well too, although I get freaked out thinking about what I was doing or saying when I was under general anesthesia.

2 medical things taken care of and checked off the moving-to-India list. Great! So now to the hip. The hip has been an issue for about 2 years. Sometimes it’s really bad and I want to throw up and cry, and other times it doesn’t hurt at all. I had it a tiny bit when I was pregnant with Masan, but it came back in a big way when I was pregnant with Mia and never went away. So far to treat this hip issue I have had acupuncture, worked out every day, not worked out at all, gone to physical therapy twice a week for 6 months, done pilates, taken yoga classes, had 2 spinal epidurals, had an MRI which showed a herneated disc in my back, and am seeing a holistic energy healer named Dr. Cliff twice or three times a week. He’s amazing. But I am still in pain every other day. Because I have to get some relief and can’t just rely on muscle relaxers (I have been watching Nurse Jackie lately and a big fear of mine is falling into a big dependance on pain killers—and nope, a half a Xanax to deal with family weekends and medical procedures doesn’t count. And I checked with a doctor and one can’t get addicted to ibuprofen). So ANOTHER doctor was added to the list. This one did a full work up to see if I indeed have piriformis syndrome, which involved being hooked up to some type of electrodes which shocked various parts of my legs. The result is that I do have mild piriformis syndrome (what would full blown p.s. feel like?!?) and some neurological damage, but not too bad. Yoga poses and some cortisone/botox shots are the plan, so we will see.

On some level, I think my body is having these issues because it’s tired. We are all tired, I know. Life is hectic. There are so many pressures and so much going on all the time. However, being the primary caretaker of young kids makes one a different level of tired. A tired beyond tired. It’s that state of hyper-awareness that’s turned up all the time to keep the 15 month old safe, coupled with the refereeing of the older two that really do me in. It’s so tricky finding a moment to take care of myself in a meaningful way. I may go online to see if I can find myself a bargain on a pair of shoes, make a cup of coffee around 3 pm, pour myself a glass of wine at 5, or watch some true crime documentary while I make dinner to relax, but these are short-lived treats that don’t nourish souls or rejuvenate like I need. Even a trip to the spa to use the gift cards I received from a dear friend didn’t have the lasting effects I had hoped for. It’s probably because I have to jump back into chaos as soon as I get back home. I need a transformation in the way that I handle stress and care for myself instead of just escaping for a few hours. If I figure out how to nurture myself in the midst of this exciting, crazy life, I will bottle it and send it to all the brave, strong moms I know. And if you have it figured out, will you please get in touch? Sometimes it seems that having a place to have a voice helps with the stress. A place for me to process stuff going on with me apart from my roles as “mom” and “wife.” That’s really one of the goals of this blogging. Hope it works, however, right at this moment the baby is screaming for me to pay attention to her so this typing is actually making things worse. It’s a process, I know, I know.

Breaking the News

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The sassy, quintessential Brooklyn kids took the news pretty well!
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Masan’s drawing of the beginning of an Indian story.

So that went better than anticipated. This morning during family breakfast (family breakfast meaning that Daddy was home to eat with us and the TV was off), the blizzard of 2016 and Mia’s nap we told the big girls about the move to Bangalore. M cried exactly one time when she realized she wouldn’t see her friends for 2 years, and E was too distracted by the snow outside to fully process what we were talking about, although her eyes grew wide when we mentioned that she would get to ride an elephant.

Based on what I know from studying child development and from what I have read in various parenting articles, I knew intellectually that it was probably better to disclose closer to the move itself. However, being from a family that was almost never forthcoming with information (although the intentions were always good ones), secrets weigh heavily on me. I hate them. I feel guilty for knowing things others don’t. With all the planning that goes into an international move D and I knew that we probably wouldn’t be able to keep this a secret from two observant 6 and 4 year olds, and we want them to feel involved and empowered as much as possible. So hence, the conversation this morning. And with all the snow outside and crazy weekend activities cancelled, we knew that we would have lots of time to answer any questions and help the girls to hopefully feel understood and listened to.

My favorite part of the discussion was when we were watching a YouTube video of kids touring India. M asked us to pause the video while she went to her room to look for something. She came back out and asked me where the “red thing is that I wear when I am a pirate.” No idea. But I absolutely love the enthusiasm and the need to dress for the occasion. M seemed very excited about the clothes and asked if she can have Indian clothing made for her like the kids in the video. That’s my girl. And Evie seemed very enthusiastic about the bindi that gets put on the forehead.

Both girls were excited and concerned by videos of the Holi festival we showed them on YouTube. They asked me several times if it was okay if they got their clothing dirty (my neat freak fault, I know, I know) when colors were thrown at them. And of course M asked if she could do her own colors to make her own design.

Wait, not Brooklyn Mama in Mumbai?

IMG_2208.PNG copyI have written exactly one previous post in my brand new, first-ever blog called ‘Brooklyn Mama in Mumbai.’ It’s about being a Brooklyn mama about to move to Mumbai, India, and now I’m moving to Bangalore instead. And to make things a bit more tricky, Bangalore was renamed Bengaluru November 1, 2014. However, because it took me so long to figure out how to change the name of this blog from brooklynmamainmumbai to brooklynmamainbangalore, I hope I will not cause any disrespect by keeping this blog’s current name. Down the road I may need to change it again.

This weekend on a walk alone without the kids along a river in Wilmington, Delaware while the in-laws were in the children’s museum watching the kiddos, D asked me how I would feel about moving to Bangalore instead of Mumbai. It might have been the half a Xanax I took (my protocol for any overnight trip with 3 small kids and extended family—love them all!), but I said I that was fine (?!?). Bangalore supposedly has a milder climate (80 degrees instead of 90-110) and more school options for the kids, so it sounds good to me. Actually, D had me at hot, instead of boiling. I already feel like I have hot flashes in December in Brooklyn, I can’t imagine what summer in Mumbai would be like. (Ah, to be 40!).

D said that he was relieved that I was so agreeable. He had been worried about how to tell me and even more so, what my reaction would be. How long he had known that the-powers-that-be would like us to go to Bangalore instead? Since Friday. How could he not have told me something this big right away—the right way to ask me be damned! The fact that he had known some new info about our move around the world for 2 days and hadn’t told me worried me. It fed into the general anxiety I struggle with—of feeling like I don’t have control over anything (this started in a big way with the years of infertility in my early 30’s, then unemployment, dwindling savings, domestic adoption, but it probably has roots in childhood stuff because I remember the yucky butterflies in the stomach feeling as far back as I can go). So the more info I have about the move, the better I feel. And I am big into prep. Probably more now than ever because D is not a big plan ahead guy, so I feel obligated to plan to make sure all the balls stay in the air.

Laying in bed last night the fear of the unknown reared it’s ugly head. It’s almost the end of January and we are supposed to move in June (hopefully after the last day of school for M and E). That’s a bit more than 5 months away. Nothing has been done for the move. Nothing. We don’t have school lined up for the girls, we haven’t even told the girls yet (how can we when so many of their questions don’t yet have answers?), we don’t know when we are going over to India to look for housing. We need to book flights, get immunizations, get passports, start going through our stuff to decide what gets moved with us, what goes to storage and what gets given away, thrown away or sold. Apparently there will be a meeting with D’s work at the end of January and dates will be decided. But until then I am left in limbo without being able to plan or systematically check things off my list. Because of my nature I can’t just sit back and wait, so I am doing what I can. I have gone through a couple of drawers to weed things out. I have a bag of clothes and one of 80’s belts (what was I thinking?) that I am going to try to sell or donate. And we are going to get the girls’ passports this Tuesday when they have the day off school. And I will continue to go through things around the house, not because it’s super productive to do so, but because it calms the anxiety just a bit to be doing SOMETHING, ANYTHING.

This brings me back to when D was job hunting during the worst recession in recent history, M was a toddler, and I was a mess. Would we move back in with our parents? Would he get funding to start his own business? Would he get a job? I had to wait. And wait. And try to do what I could to make things okay for my child, my husband and myself in the midst of the uncertainty. And it was hard, so hard, but we came through it.

Thinking back, there were dozens of times in my life that seemed really grim–when I broke off an engagement with someone I truly loved, when we were going through infertility, when we were trying to adopt, when we were dealing with job situations and unemployment, and it always worked out. Not how I thought it would, but even better than I could have envisioned. When I try and try to ‘do’, I just feel like I am running in circles. When I sit down with the uncertainty, in the middle of the chaos in my gut, and say a prayer, and try to let go, I am remind that God really is in charge. He has a plan that’s much better than the one that I had. And he is trying to teach me something with this uncertainly. I HATE learning it, but it’s going to make me a more patient, loving, less controlling person when all is said and done, right? Hopefully?

 

Puppet Theatre Peace

mahatma-gandhi-31A field trip with Masan’s class today to PS 3 in Bed Stuy to see a shadow puppet play about peace. We traveled by school bus to get there, in those sticky, tall, faux leather seats, which in itself brought back so many memories. Being on the bus with my own 6 year old child was just so full circle—especially when she reminds me of a much cooler, more confident version of myself at that age.

Tomorrow is our 10 year wedding anniversary, and coupled with the fact that both D and I turned 40 this year has brought up a few of those “this is not my beautiful house, this is not my beautiful wife” Talking Heads moments. How did I get here? Am I where I want to be? Better yet, where did I think I would be at this stage in my life? I certainly didn’t think that I would have 3 lovely girls, be married to a kind, funny man, and be living in Brooklyn, New York. Things are so much better and more interesting than I could have imagined. And yet…I didn’t think that I would be living in a space where we wait in line to use our 1 bathroom and don’t have any place to escape to when the 3 kiddos have turned the living room/dining room into a pirate ship. I didn’t think I would be 40 and still renting an apartment. By 40 I thought I would certainly be a home owner. My parents bought a home when they were in their mid-20’s, for goodness sake! It’s when these thoughts come into my mind that I am reminded of a song that I learned when I was 5—I don’t remember all of the words, but the gist is that we should be grateful for the good things that we have because for many, these good things are just a dream. So there’s the longing for what I don’t have and the guilt over the longing, in typical Masaniello-style.

This home ownership stuff came up for me in a big way today when the 2 other chaperones for the field trip were talking about the renovations on their respective apartment and new house. I had nothing to add to the conversation, and felt embarrassed, as if my adult development was delayed. And as if I was somehow less than or a bad parent because I don’t own a place. And then the blame comes raining down—I wish I had been a better saver, I wish I had held higher paying jobs, I wish D made more money, even though by any normal standards he makes plenty more than enough (we just live in this way over-priced, trust fund bubble of Brooklyn), and like any of the home owners I know around here, I wish I had parents who passed down a place to us or were able to help us buy one. Obnoxious thoughts, but they are what they are. And of course then I was reminded to thank God that we have a place to live, even if it doesn’t belong to us, and can put a roof over our kids’ heads and live in a vibrant, diverse, safe neighborhood.

So it was with all of this baggage and this wanting-more-lens that I was watching the puppet theater performance at PS 3 through. As I watched these mostly 20-something’s sing and dance across the stage I started to stress a bit about how they were being paid, how much they were being paid, and how did they possibly pay their rents with what they were paid. In my head I was telling them to save their money, to go find better paying jobs, to move out of the city so that their future selves would be able to one day own a home for their children.

At one point in the performance, which focused on peace, Mahatma Gandhi came up. The actors spoke in a child-friendly way about his message of peace for the world, and a song and dance was performed with an Indian flair. Immediately I was shaken out of my misery, and reminded that God has a plan. He always has a plan. It was a kind of stay-the-course reminder that I may not have all the resources and answers that I would like to have, but God has always and will always take care of me. He is proving a way for my family and I to go have an adventure of a lifetime and live in Mumbai, India. Imaging myself at 40 did I ever think that I would have a chance to live in another country, let alone one that I have been enamored by since I was 5 years old? Nope, never.

The Late, Great David Bowie

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Ghandi said, “Speak only if it improves the silence.” And since there is no way that what I would write would improve upon the music I’ll let D.B. have this one all to himself.

Changes

I still don’t know what I was waiting for
And my time was running wild
A million dead-end streets
And every time I thought I’d got it made
It seemed the taste was not so sweet
So I turned myself to face me
But I’ve never caught a glimpse
Of how the others must see the faker
I’m much too fast to take that test

Ch-ch-ch-ch-changes
(Turn and face the strange)
Ch-ch-changes
Don’t want to be a richer man
Ch-ch-ch-ch-changes
(Turn and face the strange)
Ch-ch-changes
Just gonna have to be a different man
Time may change me
But I can’t trace time

I watch the ripples change their size
But never leave the stream
Of warm impermanence and
So the days float through my eyes
But still the days seem the same
And these children that you spit on
As they try to change their worlds
Are immune to your consultations
They’re quite aware of what they’re going through

Ch-ch-ch-ch-changes
(Turn and face the strange)
Ch-ch-changes
Don’t tell them to grow up and out of it
Ch-ch-ch-ch-changes
(Turn and face the strange)
Ch-ch-changes
Where’s your shame
You’ve left us up to our necks in it
Time may change me
But you can’t trace time

Strange fascination, fascinating me
Changes are taking the pace
I’m going through

Ch-ch-ch-ch-Changes
(Turn and face the strange)
Ch-ch-changes
Oh, look out you rock ‘n rollers
Ch-ch-ch-ch-changes
(Turn and face the strange)
Ch-ch-changes
Pretty soon now you’re gonna get older
Time may change me
But I can’t trace time
I said that time may change me
But I can’t trace time